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Expertise Expérientielle et Savoirs Situés

Publications intégrant le vécu de personnes sorties de dérives sectaires, épistémologie de la pair-aidance, légitimité du savoir expérientiel dans la recherche.

49 articles disponibles

lived experience research
peer support mental health expertise
experiential knowledge recovery
first person research trauma
epistemic injustice survivor

Embedding lived experience in mental health research: what we need to pack (and unpack) for the future in mental health research and translation.

The incorporation of lived experience in mental health research has been a challenge for decades, pushing the boundaries of research to focus on the priorities of those most impacted. The people who s…

Expertise Expérientielle et Savoirs Situés
Banfield, M., & Palmer, V. J. (2025). Embedding lived experience in mental health research: what we need to pack (and unpack) for the future in mental health research and translation.. BMJ Open, 15(5), e098557. https://doi.org/10.1136/bmjopen-2024-098557
30/05/2025 Lire →

i-REBOUND Cook Well After Stroke: Co-Designing a Culinary Nutrition Programme for Australian Stroke Survivors.

INTRODUCTION: Stroke is a life-altering event for survivors. While improving diet quality is associated with reduced stroke risk, the post-stroke effects often make meal preparation difficult. There i…

Expertise Expérientielle et Savoirs Situés
Chun, C. T. N., MacDonald-Wicks, L., English, C., Lannin, N. A., Janssen, H., Davey, J., Kempson, C., Hopper, B., & Patterson, A. (2025). i-REBOUND Cook Well After Stroke: Co-Designing a Culinary Nutrition Programme for Australian Stroke Survivors.. J Hum Nutr Diet, 38(2), e70045. https://doi.org/10.1111/jhn.70045
01/04/2025 Lire →

Embracing dissensus in lived experience research: the power of conflicting experiential knowledge.

Lived experience is a crucial component in the development of innovative interventions and services in mental health care. To unlock the full potential of this valuable source of knowledge, it is esse…

Expertise Expérientielle et Savoirs Situés
Speyer, H., & Ustrup, M. (2025). Embracing dissensus in lived experience research: the power of conflicting experiential knowledge.. Lancet Psychiatry, 12(4), 310-316. https://doi.org/10.1016/S2215-0366(25)00003-3
01/04/2025 Lire →

Capacity-building strategy for next-generation mental health research: embedding a national network infrastructure to grow mental health researcher capabilities and mental health lived-experience research leaders.

Internationally, capacity building for mental health implementation and translation research has lagged. A review of literature found initiatives since 2008 indicating limited dedicated attention to g…

Expertise Expérientielle et Savoirs Situés
Jazayeri, D., Banfield, M., Tapp, C., Tjung, C., Stettaford, T., Stewart, V., Valuri, G., Chong, T., Cullen, P., McGrath, M., Cooper, R., Wheeler, A. J., Neil, A. L., Kisely, S., Bennett, J., Preen, D., Eades, A. o. . S., Sanci, L., Baker, E., & Palmer, V. J. (2025). Capacity-building strategy for next-generation mental health research: embedding a national network infrastructure to grow mental health researcher capabilities and mental health lived-experience research leaders.. BMJ Ment Health, 28(1). https://doi.org/10.1136/bmjment-2025-301554
25/03/2025 Lire →

Translating acceptability to sustained delivery: Clinician and manager perspectives on implementing modified constraint-induced movement therapy in an early-supported discharge rehabilitation service.

BACKGROUND: Modified constraint-induced movement therapy (mCIMT) improves upper limb (UL) function after stroke. Despite up to one-third of stroke survivors being eligible, clinical uptake remains poo…

Expertise Expérientielle et Savoirs Situés
Weerakkody, A., Godecke, E., & Singer, B. (2025). Translating acceptability to sustained delivery: Clinician and manager perspectives on implementing modified constraint-induced movement therapy in an early-supported discharge rehabilitation service.. Aust Occup Ther J, 72(1), e12993. https://doi.org/10.1111/1440-1630.12993
01/02/2025 Lire →

Understanding the lived experience research priorities for improving health-related quality of life in people living with HIV with cognitive impairment.

BACKGROUND: People living with HIV experience higher rates of cognitive impairment (CI), and at younger ages, than the general population. These individuals report poor health-related quality of life …

Expertise Expérientielle et Savoirs Situés
Alford, K., Vera, J. H., Hammond, J., & Daley, S. (2024). Understanding the lived experience research priorities for improving health-related quality of life in people living with HIV with cognitive impairment.. HIV Res Clin Pract, 25(1), 2358724.
01/12/2024 Lire →

People from ethnic minorities seeking help for long COVID: a qualitative study.

BACKGROUND: People from ethnic minority groups are disproportionately affected by COVID-19, less likely to access primary health care, and have reported dissatisfaction with health care. Although the …

Expertise Expérientielle et Savoirs Situés
Smyth, N., Ridge, D., Kingstone, T., Gopal, D. P., Alwan, N. A., Wright, A., Chaudhry, A., Clark, S., Band, R., & Chew-Graham, C. A. (2024). People from ethnic minorities seeking help for long COVID: a qualitative study.. Br J Gen Pract, 74(749), e814-e822. https://doi.org/10.3399/BJGP.2023.0631
01/12/2024 Lire →

Partnership between a consumer-led mental health research network and a large mental health research organisation: an Australian mixed methods case study.

AIM: This paper presents a case study review of an Australian research partnership between an independent mental health lived experience-led research network and an academic organisation established f…

Expertise Expérientielle et Savoirs Situés
Banfield, M., Berry, B., Rose, G., Heffernan, T., Schweizer, R., Aadam, B., Gill, K., Foxlewin, B., Schaecken, P., & Trias, A. (2024). Partnership between a consumer-led mental health research network and a large mental health research organisation: an Australian mixed methods case study.. Res Involv Engagem, 10(1), 118. https://doi.org/10.1186/s40900-024-00645-4
07/11/2024 Lire →

Lost in translation: a narrative review and synthesis of the published international literature on mental health research and translation priorities (2011-2023).

BACKGROUND: Priority setting in mental health research is arguably lost in translation. Decades of effort has led to persistent repetition in what the research priorities of people with lived-experien…

Expertise Expérientielle et Savoirs Situés
Palmer, V. J., Wheeler, A. J., Jazayeri, D., Gulliver, A., Hegarty, K., Moorhouse, J., Orcher, P., Banfield, M., & ALIVE, N. a. t. i. o. n. a. l. . C. e. n. t. r. e. . f. o. r. . M. e. n. t. a. l. . H. e. a. l. t. h. . R. e. s. e. a. r. c. h. . T. r. a. n. s. l. a. t. i. o. n. . I. n. v. e. s. t. i. g. a. t. o. r. . G. r. o. u. p. (2024). Lost in translation: a narrative review and synthesis of the published international literature on mental health research and translation priorities (2011-2023).. J Ment Health, 33(5), 674-690. https://doi.org/10.1080/09638237.2024.2332808
01/10/2024 Lire →

Omission of mental health lived-experience research in implementation research commission.

Expertise Expérientielle et Savoirs Situés
Palmer, V. J., & Banfield, M. (2024). Omission of mental health lived-experience research in implementation research commission.. Lancet Psychiatry, 11(6), 409. https://doi.org/10.1016/S2215-0366(24)00114-7
01/06/2024 Lire →

A Constructivist Grounded Theory Study on Mental Health Recovery from a Lived Experience Perspective in Singapore.

More contemporary personal recovery conceptualisation of mental health recovery emphasize the need to consider the perspectives of people who experience mental ill-health. Most lived experience resear…

Expertise Expérientielle et Savoirs Situés
Kuek, J. H. L., Raeburn, T., Chow, M. Y. Z., & Wand, T. (2024). A Constructivist Grounded Theory Study on Mental Health Recovery from a Lived Experience Perspective in Singapore.. Community Ment Health J, 60(2), 394-402. https://doi.org/10.1007/s10597-023-01184-0
01/02/2024 Lire →

Experience is central and connections matter: A Leximancer analysis of the research priorities of people with lived experience of mental health issues in Australia.

Mental health research priority-setting has a long history internationally. Many of these studies use expert panels or consensus methods across multiple mental health stakeholder groups. Whilst such a…

Expertise Expérientielle et Savoirs Situés
Banfield, M., Gulliver, A., Jazayeri, D., Palmer, V. J., & ALIVE, N. a. t. i. o. n. a. l. . C. e. n. t. r. e. . f. o. r. . M. e. n. t. a. l. . H. e. a. l. t. h. . R. e. s. e. a. r. c. h. . T. r. a. n. s. l. a. t. i. o. n. . I. n. v. e. s. t. i. g. a. t. o. r. . G. r. o. u. p. (2024). Experience is central and connections matter: A Leximancer analysis of the research priorities of people with lived experience of mental health issues in Australia.. PLOS Ment Health, 1(1), e0000010. https://doi.org/10.1371/journal.pmen.0000010
01/01/2024 Lire →