Living beyond cancer in childhood and adolescence: A systematic review.

Résumé

PURPOSE: This study aimed to synthesize qualitative evidence on the lived experiences of childhood and adolescent cancer survivors (CACSs), focusing on both challenges and positive transformations after treatment.METHODS: A qualitative meta-synthesis was conducted following PRISMA guidelines. Nineteen qualitative studies published between 2015 and 2025 were critically appraised using the Joanna Briggs Institute checklist. Data were analyzed through thematic and content analysis to generate descriptive and analytical themes.RESULTS: Five overarching themes and 21 sub-themes were identified. (1) Returning to school and self-identity: CACSs reported academic disruption, body image concerns, and struggles in peer relationships, but also identity reconstruction and renewed belonging. (2) Endeavor for healthy life: CACSs actively engaged in health-promoting behaviors, self-management, and digital or educational tools. (3) Psychosocial support needs: multidimensional support from family, peers, professionals, and spirituality was crucial. (4) Survivorship-related difficulties: participants expressed fear of relapse, long-term physical and cognitive late effects, and barriers in healthcare, education, and society. (5) Growth, transformation, and positive meaning: CACSs described gratitude, resilience, maturity, and future orientation, reframing cancer as a source of personal growth.CONCLUSIONS: CACSs are characterized by both significant challenges and transformative growth. Findings highlight the necessity for tailored, multidimensional interventions addressing education, healthcare, psychosocial support, and resilience-building strategies.IMPLICATIONS TO PRACTICE: Educational, digital, and psychosocial strategies should be strengthened to enhance school reintegration, self-management, and resilience. This synthesis provides important evidence to inform clinical practice, educational programs, and policy development aimed at improving CACSs' long-term quality of life.