Photography and perinatal loss: parents' experiences of memory-making and meaning.

Résumé

BACKGROUND: Existing literature acknowledges photography's potential as a supportive psychosocial intervention for parents experiencing perinatal loss. However, empirical research that centres bereaved parents' lived experiences remains limited.METHODS: To explore the meaning of photography in the context of perinatal loss, a qualitative approach was utilised, combining life story and semi-structured interviews with bereaved parents (seven interviews, including two dyadic;  = 9).RESULTS: Photography was described as one among several forms of memorabilia, yet distinguished by its tangibility and shareability. Parents discussed a spectrum of photographic representations - from raw to serene - shaped by factors such as the photographer's professional background. The photographs fulfilled multiple functions, including sharing the child with the outside world, facilitating conversations, and connecting with peers. For some, engaging with photography fostered a more active and engaged role towards other bereaved parents. However, this engagement was not always met with social acceptance.CONCLUSION: Our research shows the value of photography in the context of perinatal loss while also pointing to several recommendations at the level of bereavement care in hospital policies and practices (e.g. facilitating collaboration with professional photographers).