CredoScientia - Ambiguous loss and disenfranchised grief: the impact of DNA predictive testing on the family as a system.

Une initiative de

Cet outil s'appuie sur PubMind

PubMind est une plateforme collaborative de veille scientifique qui permet d'importer des publications depuis PubMed, de suivre leur avancement de lecture, d'en extraire les éléments méthodologiques clés (protocoles, variables, résultats) et de constituer une synthèse structurée afin de faciliter la réalisation de revues de littérature. Entièrement personnalisable, cet outil s'adapte aux thématiques de recherche de ses utilisateurs.

Nous l'avons configuré ici pour centraliser et analyser la littérature scientifique concernant les croyances, les traitements psychologiques, l'étude de la scrupulosité, ainsi que l'impact et la prise en charge des troubles liés aux dérives sectaires.

Résumé

DNA predictive testing to diagnose the presence of hereditary disease in asymptomatic individuals has become increasingly available. Information provided by these tests has implications for all relatives. In an exploratory study we examined the impact, from the family's perspective, of predictive DNA testing for Huntington disease on the family as a system. Central to their stories was a sense of loss and grief that was perhaps unique to the testing situation. The description of these losses is presented in the context of ambiguous loss as defined by Boss, disenfranchised grief as presented by Doka, and anticipatory grief as addressed by Rolland. These theories suggest clinical interventions that can be used by healthcare professionals to help families adjust to the psychosocial consequences of testing.