Exploring the experiences of Colombian family carers of children with traumatic brain injuries.

Résumé

PURPOSE: Brain injury is a leading cause of death and disability, with family carers playing a critical support role. In Low- and Middle-Income Countries (LMICs), research has largely focused on quantitative data, limiting insight into carers' lived experiences. This study explores the experiences and support needs of family carers of children with traumatic brain injury in Colombia.MATERIALS AND METHODS: Semi-structured online interviews were conducted with carers recruited through voluntary sector organisations. Data were analysed using thematic analysis.RESULTS: Three main themes and eight subthemes were identified. Carers described challenges navigating healthcare, worsened by social stigma and a general lack of awareness about brain injury. Families experienced major disruptions to all aspects of life, leading to emotional distress and grief for their previous normalcy. Adapting to their child's condition was a continual struggle. Carers expressed a strong need for accessible information about brain injury and peer support.CONCLUSIONS: Families in LMICs face similar emotional challenges to those in high-income countries, but issues like poor healthcare access and financial instability add further strain. While systemic change is needed, culturally tailored online support programs could offer practical, immediate assistance to families navigating life after brain injury.