Evaluation of a 'Research Methods' Training Course for Novice Lived Experience Researchers.

Résumé

BACKGROUND: The training of lived experience researchers (LERs) for involvement in research design and conduct is a key principle to its success. However, little is known about what research methods training is acceptable and beneficial to novice LERs.METHODS: A training evaluation using a slightly modified version of the Training Acceptability Rating Scale (TARS), and a concluding stakeholder engagement workshop. Responses to the quantitative items were summarised using descriptive statistics, and qualitative responses were coded using content analysis.RESULTS/FINDINGS: The trainees rated the overall training favourably (median overall TARS = 54/63; median acceptability = 31/36; median perceived impact = 23/27), but there was slight variation between sessions. There were six qualitative themes: valued learning format; valuing research knowledge; valued the centring of lived experience; gaps in training provision; more lived experience research focussed; and consider further support of LERs.CONCLUSIONS: The training was found to be acceptable and beneficial, with trainees particularly valuing lived experience facilitation, case studies and tailored content. Trainees suggested the training could be improved by addressing theoretical, existential and skills gaps, and by making it more lived experience research focussed throughout.PATIENT OR PUBLIC CONTRIBUTION: This training evaluation and engagement workshop project was developed and overseen by a long-term service user with lived experience of mental distress. The workshop topic guide was co-designed with four people with lived experience, who were also involved in data analysis and co-constructed the findings. Finally, this paper concludes with a commentary on this study provided by a trainee with lived experience.